Well, I am going to do a little bit of whining here. Wanna hear it? Here it goes!
I lost my job in early 2025. I tried to find a “work from home” remote job to no avail. I just no longer have the cognitive ability to even find a job let alone be of help to anyone enough to earn an income.
I even tried selling our things on marketplace and craigs but, it takes me two hours just to make a post for a music cd. My husband does it in less than 10 minutes. He already works two full time jobs AND does odd jobs for people. This is still not enough because our lot rent here has increased yet again without any proof of why except, well, greed.
My husband stopped taking his meds to help us get by. He has embraced the holistic approach in order to replace his medications.
He makes a concoction, I drink it too which I mentioned in another post here. It’s apple cider vinegar, turmeric, cayenne pepper, ginger, 5 mushroom powders, aloe and lemon juice which he calls “Parkinson’s Punch”. He also takes l-lysine, Shilajit, Resveratrol, Saffron, beet root, seaweeds, Diosmin, NAD+, NMN, DoSe and other supplements he gets for free by reviewing them on Amazon.
We have had issues with supplements counter acting my medications so, we are very careful as to what I try. We ask our neurologist too. The one supplement that helps both of us A LOT is Lions Mane Mushroom. Also, these patches help me substantially too. The patches help so much that I only need to inject Apokyn every now and then instead of twice a day.
So, since I can no longer work, we applied for disability with the services of a lawyer, Barry Salzman, who specializes in disability. That will cost about $9300 or more which is taken from whatever back payments I would have received! Since covid however, it will take a year or more before I start receiving benefits IF I AM APPROVED. I honestly do not think we can hang on that long financially without getting evicted. We are already living out of a monthly food box, Jim does odd jobs for food or cash, people around here give us the extra stuff or things they do not want from their food boxes too. I am going to sell my car which, will help with a couple thousands bucks and the savings on auto insurance too. It is just down right a difficult struggle here. My husband just turned 64, he has worked all of his life since 12 years old including ~40 years in corporate until they outsourced to China. There is no chance of him retiring, ever. Jim says, “I’ll take time off when I am dead”.
“Time off” is a rare luxury. ANYONE who has weekends off, or only works 40 to 50 hours a week, should feel VERY privileged! You would not believe the excuses we hear from people who say they “just don’t have time” to take care of necessary things in their life. Cooking, cleaning, yard work etc… Plenty of time for social media, video games or going out though, I digress. 
My husband is still typing this out for me, will continue as time permits.